Tag Archives: trials

Of Wheelchairs And Joy

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Her life as she knew it changed forever when she was 17 and she has faithfully used the crazy hard changes for truth and beauty and just recently, the children and I had the great privilege of actually meeting Joni Eareckson Tada.  I watched their faces and they were afraid to get too close lest they hurt her – they have yet to fully understand her wheelchair and it’s reasons – but she smiled at them and encouraged them to come closer and they couldn’t resist her joy.

Do you know her story?   It’s real and it’s raw and she’s a hero of mine because she never stops seeking the goodness of God when all the life circumstances are anything but.  Knowing her story, listening to her speak, reading her writing – all of it – is such a wonderful reminder that the day for no pain and tears is coming.  It is not today, but it’s coming, and God remains faithful while we wait.

Moment by moment.

“There is no circumstance, no trouble, no testing, that can ever touch me until, first of all, it has gone past God and past Christ, right through to me. If it has come that far, it has come with a great purpose.” – Alan Redpath

[This quote is a favorite of mine and is listed among Mrs. Tada’s favorites as well.]

 

Day One: A Reflection

With his backpack and IV bag preparing to leave in the early morning…

One day down, twenty-nine more to go…

I’ve mentioned before how very much I hate separating from Chase before a procedure and today was no exception.  I left my unconscious child in a full body mold in the middle of a huge radiation machine, turned my back, and walked away.  With this heavy on me, I cried the whole way back down the hall (much to the chagrin of the nurse escorting me, I’m sure…).

Snug on the ride home; sleeping off the anesthesia

This entire radiation decision feels like a step down the path of destruction.  The doctors (and we with them) must tear and ravage his body with everything there is in the hope of once and for all eradicating this terrible thing that is greater still than the near deathly salvation they’ll put him through.

And yet…

I thought again today about the words of Psalm 139 and realized, no, this is not a road to destruction, but to perfection!

I thought I had a healthy and perfect baby boy one December afternoon.  I still remember the first pink tinge of life effusing his skin as they laid him in my arms.  How beautiful he was.

And yet…

My mind cannot fully grasp this, yet my heart cries out that it is true: that December afternoon was but the beginning of a journey to perfection.  Chase is only now becoming who his loving Heavenly Father desires him to be!

We don’t know now.  But one day we will.

So we will endure that we may be complete.  Lacking in nothing. (James 1:2-4)

Moment by moment.

Rubbing lotion on his head and back to protect against burns