Tag Archives: blessed

Chase’s Story [VIDEO]

Have you ever seen this video of Chase?

If not, I highly recommend it.  And even if so, feel free to watch it again…  We have been so blessed to partner with the St. Baldrick’s Foundation this year and are continually thankful for the platform they give us to share Chase’s story with so many.

-MbM-

[Our deepest gratitude to the incomparable Matthew Lackey for his mad, crazy video skills.  Also, a huge thank you to both Jane Hoppen and Kristen Thies for all they did to put together the finished product and the time spent filming it.]

12.12.14

“Mom? Are you awake?”  The quiet voice came into the dark room from the silhouette of a fuzzy head in the hall light.  “Mom?  It’s me.  I just came to tell you it’s my birthday.  I’m five today and I’m going to open presents and…and…what am I going to do today?”

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Some days, he might need to be reminded of what you do on a birthday as the scars present their challenges, but he didn’t need help remembering that he’s here and he’s five.  And neither do I.

December 12, 2012

December 12, 2012

As I watch him open presents and I frost his cake, I find myself wanting to savor every second lest I never have graduations, weddings, and all those things that come with living long years.

Yet, as the fuzzy head tucked under my chin  and the downy quilt early in the dark morning hours, I could hear his smile in the shadows and that colors the canvas of the day.  The smile sounds spoke to my heart again: Chase chooses joy.  Always joy.

December 12, 2013

December 12, 2013

“Mom?” His voice across the breakfast table; “why are you crying, Mom?  I didn’t die of the cancer.  I’m five!”  And I wonder in my heart how such an old soul can be only five years young.  Always joy.

“Let’s just start this fight, and then we’ll get him through radiation, and then we’ll hopefully get him to age three, and then four, and then five…”  The doctor’s words always remind on this twelfth day of the last month.  Five.  The highest number listed in that year-by-year hope around the first conference table and diagnosis.

Today, my, precious, stubborn, tenacious, beat-the-odds, stare-it-down, never-say-die, don’t-mess, you-and-what-army Chase turns five with great joy.

We never thought we’d be here ever… and now we’re here.

God is good.

~MbM~

December 12, 2014

December 12, 2014

 

 

Giving Thanks

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Last year and this year too, we take a moment to reflect…

This Wednesday in 2012, Chase was deep into radiation in addition to his chemo therapy and was staying in the hospital. He was weak and his counts were very low, but he was stable and so, late in the afternoon of this Wednesday, I held his weak and white body by the window and stared out at the lake, shielding his face – his eyelids covered in scabs from where daily anesthesia tape had ripped the tender skin – and prayed that they would let us go home for Thanksgiving.  And then Dr. Goldman entered the room (as only he can enter a room) and told us to go.  And we went.

Two years later, we are thankful for so many things and our darling Chase is still with us to celebrate.

Giving thanks… Moment by moment.

“My heart is filled with thankfulness
To Him who walks beside;
Who floods my weaknesses with strength
And causes fears to fly;
Whose ev’ry promise is enough
For ev’ry step I take,
Sustaining me with arms of love
And crowning me with grace.” [Getty, Townend]

2012: In Our Own Words…

Christmas 2012

Looking back at all that has happened this last year, I asked everyone in my family to do a little summing up – Here is my family in their own words on 2012…

Karsten (1): [grunted and walked away]

Chase (3) [thinking he’s writing an e-mail to his hospital, which he’s never done and is unlikely to do anytime soon]: “The cancer is still running away from me because it wants to hurt me, but I am very brave. (breaks into song) God is near me, God is near me, all the time, all the time!”

Aidan (4): “I like when Christmas comes…and I like Uncle Trevor…and I get sad when Chasey hits me…but then we make it right and that makes me happy again…and Mom, when are you going to get out of my room?”

Darcy (6): “Some days I really want to go to my home and be back with my family when Mommy and Daddy don’t have to go to the hospital anymore and be on the phone with doctors all the time, but I’m very happy that I can be off school this week and that we can be together as a family.”

Bob: “If I could use one word to sum up this year, it would be ‘DIFFERENT‘. In many ways, I worked, traveled, wrote and read as in other years, yet this year was profoundly different with the cancer diagnosis. It’s ironic how the normal and the very abnormal go hand in hand.”

Ellie: I think if I also had to find one word, I’d choose ‘BLESSED‘. Never have I been so aware of all that I have and all the amazing people around me.

On that same subject, I’d like to take a moment to say thanks.  The simplicity of these words can’t possibly encompass what we feel, but on behalf of Chase and our entire family: thank you.  Some of you I know personally and some of you I may never meet, but I so wish that I could have the chance to sit down with each of you face-to-face and tell you how much all of the prayers, encouragement, gifts and service have meant to us. We are so blessed by you in ways you cannot even imagine. THANK YOU.

Truly He taught us to love one another; His law is love and His gospel is peace; chains shall He break, for the slave is our brother, and in His name all oppression shall cease.
Sweet hymns of joy in grateful chorus raise we,
Let all within us praise His holy name;
Christ is the Lord, Oh, praise His name forever!
His powr and glory evermore proclaim!

Knowing The One who heals all and frees all is our true and constant comfort in this season and always.

Moment by moment…

The Cancer And The Cough

I’d like to take a moment and interrupt our continuous cancer coverage for a brief word on … pneumonia!

That’s right, there’s pneumonia in the house.  And actually, even though I said this was a non-cancer interlude, it does indeed have implications.  Aidan (who is such a strong little man about not feeling well) was tagged with a double-lung diagnosis at the beginning of the week and we are so thankful and exited to report that even with this infection in the house, immune-compromised Chase has sailed through without any extended hospital stays!

Sometimes, it takes pneumonia to remind me how blessed I am.

Here they are: The Cancer and The Cough – on a wheelchair at a clinic visit last month (would the responsible adult please step forward?)