Yesterday’s EEG -a test we were told would take 4-6 hours- lasted a full 8 hours.
For Chase, who was being video-monitored (in addition to the electrodes covering his head), this meant about a 2 foot range of motion on the bed…for 8 full hours.
Chase. Being still. For 8 hours. Ha.
Actually, he did incredibly well considering the circumstances. It was a grueling day for him and he managed it with a great attitude.
We haven’t done this test since the initial days of his diagnosis – haven’t kept him up late into the night since two days before we found out he had a tumor and I was amazed how going through the ritual again brought back the memories of those sleep deprived, scared hours when we first felt the dread of some unknown thing being very wrong with our little boy. And then the memories passed and we had a great sense of peace and even joy in the middle of the long night and day.
We hope to hear some results within the week and will be able to discuss a plan of action with the epilepsy specialist in early April. Thank you for your prayers.
Moment by moment.